Psychological Resilience of Mothers of Children with Autism Spectrum Disorder (ASD) and Perceived Social Supportsocial Support

Aleksandra Anna Buchholz, Kornelia Czerwińska, Mariola Wolan-Nowakowska

Abstract


Introduction: Social support is a significant moderator of quality of life. Psychological resilience is a personal resource that promotes adaptation to life challenges.

Research Aim: The aim of this study was to determine the association between the level of psychological resilience of mothers of children with diagnosis of autism spectrum disorder (ASD) and their perceived formal social support. Formal support is understood as a form of institutional assistance provided to children and mothers as part of using the services of the Early Intervention Center.

Method: One hundred and forty-three mothers of children with ASD were surveyed using the Resilience Scale (SPP-25) and the Questionnaire for Mothers of Children with Autism Spectrum Disorder.

Results: Mothers of children with ASD had a higher level of psychological resilience compared to the standardised group. Mothers with higher levels of psychological resilience perceived social support better.

Conclusions: The study emphasises the need to develop psychological resilience in mothers of children with ASD, which may contribute to coping more effectively with the challenges of motherhood when faced with a child’s disability.


Keywords


psychological resilience; autism spectrum disorder; social support; motherhood

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References


American Psychiatric Association, DSM-5 Task Force. (2013). Diagnostic and statistical manual of mental disorders: DSM-5™ (5th ed.). American Psychiatric Publishing, Inc. https://doi.org/10.1176/appi.books.9780890425596

Arakkathara, J. G., & Bance, L. O. (2020). Predictive role of resilience on psychological well-being among selected mothers of children with intellectual disability. Indian Journal of Health & Wellbeing, 11(1–3), 1–4. https://doi.org/10.15614/IJHW.v11i01.1

Arnous, H., & Yeo, K. J. (2019). Mediating Effect of Perceived Social Support in the Relationship Between Resilience and Self-Esteem Among Parents of Children with Autism Spectrum Disorder. Advances in Health Sciences Research, 24, 312–319. https:// doi.org/10.2991/ahsr.k.200311.059

Block, J. H., & Block, J. (1980). The role of ego-control and ego-resiliency in the origination of behaviour. W: W. A. Collings (eds.), The Minnesota Symposia on Child Psychology (pp. 39–101). Hillsdale, Erlbaum.

Boterberg, S., Charman, T., Marschik, P. B., Bölte, S., & Roeyers, H. (2019). Regression in autism spectrum disorder: A critical overview of retrospective findings and recommendations for future research. Neuroscience & Biobehavioral Reviews, 102, 24-55. https://doi.org/10.1016/j.neubiorev.2019.03.013

Buchholz A. (2022). Wsparcie społeczne a prężność psychiczna matek dzieci z autyzmem [Niepublikowana rozprawa doktorska]. Akademia Pedagogiki Specjalnej im. Marii Grzegorzewskiej w Warszawie.

Dietert, R. R., & Dietert, J. M. (2008). Potential for early-life immune insult including developmental immunotoxicity in autism and autism spectrum disorders: focus on critical windows of immune vulnerability. Journal of Toxicology and Environmental Health, 11, 660–680. https://doi.org/10.1080/10937400802370923

Douma, J. C. H., Dekker, M. C., & Koot, N. M. (2006). Supporting parents of youths with intellectual disabilities and psychopathology. Journal of Intellectual Disability Research, 50(8), 570–581. https://doi.org/10.1111/j.1365-2788.2006.00825.x

Felizardoa, S., Ribeiroa, E., & Amantea, M. J. (2016). Parental adjustment to disability, stress indicators and the influence of social support. Procedia – Social and Behavioral Sciences, 217, 830–837. https://doi.org/10.1016/j.sbspro.2016.02.157

Fredrickson, B. L. (2004). The broaden-and-build theory of positive emotions. Philosophical Transactions of the Royal Society of London. Series B, 359, 1367–1377. https://doi.org/10.1098/rstb.2004.1512

Gardiner, E., Mâsse, L.C., & Iarocci, G. A. (2019). Psychometric study of the Family Resilience Assessment Scale among families of children with autism spectrum disorder. Health and Quality of Life Outcomes, 17(45), 1–10. https://doi.org/10.1186/s12955-019-1117-x

Garmenzy, N., Masten, A. S., & Tellegen, A. (1984). The Study of stress and competence in children: a building block for developmental psychopathology. Child Development, 55, 97–111. https://doi.org/10.2307/1129837

Ha, J.-H., Greenberg, J. S., & Seltzer, M. M. (2011). Parenting a child with a disability: the role of social support for African American parents. Family in Society, 92(4), 405–411. https://doi.org/10.1606/1044-3894.4150

Habib, H. A., Asmat, A., & Naseem, S. (2016). Parental satisfaction with life and perceived social support of parents of children with intellectual disability. International Journal of Innovation and Scientific Research, 20(2), 398–402.

Halstead, E., Ekas, N., Hastings, R. P., & Griffith, G. M. (2018). Associations between resilience and the well-being of mothers of children with autism spectrum disorder and other developmental disabilities. Journal of Autism and Developmental Disorders, 48(4), 1108–1121. https://doi.org/10.1007/s10803-017-3447-z

Hara, H. (2007). Autism and epilepsy: retrospective follow-up study. Brain and Development, 29(8), 486–490. https://doi.org/10.1016/j.braindev.2006.12.012

Heiman, T. (2002). Parents of children with disabilities: resilience, coping, and future expectations. Journal of Developmental and Physical Disabilities, 14(2), 159–171. https://doi.org/10.1023/A:1015219514621

Horton, T. V., & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46(4), 382–399. https://doi.org/10.1037/0090-5550.46.4.382

International Classification of Functioning Disability and Health, ICF (2001). World Health Organization.

Kapp, L., & Brown, O. (2011). Resilience in families adapting to autism spectrum disorder. Journal of Psychology in Africa, 21(3), 459–464. https://doi.org/10.1080/14330237.2011.10820482

Kavaliotis, P. (2017). Resilience of parents with a child with autism spectrum disorders and factors for its potential enhancement: family income and educational level. Journal of Educational and Developmental Psychology, 7, 1, 188-199. https://doi.org/10.5539/JEDP.V7N1P188

Keenan, M., Dillenburger, K., Doherty, A., Byrne, T., & Gallagher, S. (2010). The Experiences of Parents During Diagnosis and Forward Planning for Children with Autism Spectrum Disorder. Journal of Applied Research in Intellectual Disabilities, 23(4), 390-397. https://doi.org/10.1111/j.1468-3148.2010.00555.x

Khan, M. A., Kamran, R., & Ashraf, S. (2017). Resilience, perceived social support and locus of control in mothers of children with autism vs those having normal children. Pakistan Journal of Professional Psychology: Research and Practice, 8(1), 1–13.

Landry, O., & Chouinard, P. A. (2016). Why we should study the broader autism phenotype in typically developing populations. Journal of Cognition and Development, 17(4), 584–595. https://doi.org/10.1080/15248372.2016.1200046

Lee, I., Lee, E.-O., Kim, H. S., Park, Y. S., Song, M., & Park, Y. H. (2004). Concept development of family resilience: a study of Korean families with a chronically ill child. Journal of Clinical Nursing, 13, 636–645. https://doi.org/10.1111/j.1365-2702.2004.00845.x

Leone, E., Dorstyn, D., & Ward, L. (2016). Defining resilience in families living with neurodevelopmental disorder: a preliminary examination of Walsh’s framework. Journal of Developmental and Physical Disabilities, 28, 595–608. https://doi.org/10.1007/s10882-016-9497-x

Luthar, S.S. (2006). Resilience in development: A synthesis of research across five decades. W: D. Cicchetti, D. J. Cohen (eds.), Developmental psychopathology: risk, disorder and adaptation (pp. 739–795). Wiley.

Łuszczyńska, A., Kowalska, M., Schwarzer, R., & Schutz, U. (2006). Berlińskie Skale Wsparcia Społecznego (BSSS): Wyniki wstępnych badań nad adaptacją skal i ich właściwościami psychometrycznymi. Studia Psychologiczne, 3 (44), 17-27.

Masten, A. S. (2001). Ordinary magic. Resilience processes in development. American Psychologist, 56(3), 227–238. https://doi.org/10.1037//0003-066x.56.3.227

Meral, B. F., & Cavkaytar, A. (2012). A study on social support perception of parents who have children with autism. International Journal on New Trends in Education and Their Implications, 3(3), 124–135.

Mohammadi, F., Rakhshan, M., Molazem, Z., & Gillespie, M. (2019). Parental Competence in Parents of Children with Autism Spectrum Disorder: A Systematic Review. Investigacion y Educacion en Enfermeria, 37(3), 1-15. https://doi.org/ 10.17533/udea.iee.v37n3e03

Ogińska-Bulik, N., & Juczyński, Z. (2008). Skala pomiaru prężności-SPP-25. Nowiny Psychologiczne, 3, 39–55.

Ostaszewski, K. (2017). Czynniki społeczno-ekologiczne warunkujące zdrowie i dobre przystosowanie. W: B. Woynarowska (eds.), Edukacja zdrowotna. Podstawy teoretyczne – metodyka – praktyka (pp. 71–78). PWN.

Padden, C., & James, J., E. (2017). Stress among parents of children with and without autism spectrum disorder: A comparison involving physiological indicators and parent self-reports. Journal of Developmental and Physical Disabilities, 29, 567–586. https://doi.org/10.1007/s10882-017-9547-z

Papadopoulos, D. (2021). Mothers’ Experiences and Challenges Raising a Child with Autism Spectrum Disorder: A Qualitative Study. Brain Sciences, 11, 309, 1-16. https://doi.org/10.3390/brainsci11030309

Pearson, N., Charman, T., Happé, F., Bolton, P. F., & McEwen, F. S. (2018). Regression in autism spectrum disorder: Reconciling findings from retrospective and prospective research. Autism Research. 11(12), 1602-1620. https://doi.org/10.1002/aur.2035

Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: a review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11, 92–98. https://doi.org/10.1111/jppi.12072

Pisula, E. (2007). A Comparative Study of Stress Profiles in Mothers of Children with Autism and those of Children with Down's Syndrome. Journal of Applied Research in Intellectual Disabilities, 20(3), 274-278. https://doi.org/10.1111/j.1468-3148.2006.00342.x

Rattaz, C., Michelon, C., Munir, K., & Baghdadli, A. (2018). Challenging behaviours at early adulthood in autism spectrum disorders: topography, risk factors and evolution. Journal of Intellectual Disability Research, 62(7), 637-649. https://doi.org/10.1111/jir.12503

Ruiz-Robledilloa, N., De Andrés-Garcíaa, S., Pérez-Blascob, J., González-Bonoa, E., & Moya-Albiola, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35(3), 686–695. https://doi.org/10.1016/j.ridd.2013.12.007

Sekułowicz, M., & Kaczmarek, E. (2014). Ścieżki radzenia sobie matek dzieci z autyzmem – pomiędzy wypaleniem a prężnością. Niepełnosprawność. Dyskursy Pedagogiki Specjalnej, 13, 9–23.

Seltzer, M. M., Greenberg, J. G., Hong, J., Smith, L. E., Almeida, D. M., Coe, Ch., & Stawski, R. S. (2010). Maternal cortisol levels and behavior problems in adolescents and adults with ASD. Journal of Autism and Developmental Disorders, 40(4), 457–469. https://doi.org/10.1007/s10803-009-0887-0

Singh, P., Ghosh, S., & Nandi, S. (2017). Subjective Burden and Depression in Mothers of Children with Autism Spectrum Disorder in India: Moderating Effect of Social Support. Journal of Autism and Developmental Disorders, 47, 3097–3111. https://doi.org/10.1007/s10803-017-3233-y

Southwick, S. M., Sippel, L., Krystal, J., Charney, D., Mayes, L., & Pietrzak, R. H. (2016). Why are some individuals more resilient than others: the role of social support. World Psychiatry, 15(1), 77-79. https://doi.org/10.1002/wps.20282

Twoy, R., Connolly P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19, 251–260. https://doi.org/10.22037/ijcn.v16i2.31518

Upadhyay, J., Patra, J., Tiwari, N., Salankar, N., Ansari, M.N., & Ahmad, W. (2021). Dysregulation of Multiple Signaling Neurodevelopmental Pathways during Embryogenesis: A Possible Cause of Autism Spectrum Disorder. Cells, 10 (4), 1-20. https://doi.org/10.3390/cells10040958

Vidyasagar, N., & Koshy, S. (2010). Stress and coping in mothers of autistic children. Journal of the Indian Academy of Applied Psychology, 36(2), 245–248. https://doi.org/ 10.4103/IJPSYM.IJPSYM_333_19

Volkmar, F. R., Lord, C., Bailey, A., Schultz, R., & Klin, A. (2004). Autism and pervasive developmental disorders. Journal of Child Psychology and Psychiatry, 45(1), 135–170. https://doi.org/10.1046/j.0021-9630.2003.00317.x

Yates, K., & Le Couteur, A. (2009). Diagnosing autism/autism spectrum disorders. Paediatrics and Child Health, 19, 55–59. http://doi.org/10.1016/J.PAED.2016.08.004

Yates, T. M., Tyrell, F. F., & Masten, A. S. (2015). Resilience theory and the practice of positive psychology from individuals to societies. W: S. Joseph (eds.), Positive psychology in practice: promoting human flourishing in work, health, education, and everyday life (pp. 773–788). Wiley & Sons.

Zimmerman, M.A. (1995). Psychological empowerment: Issues and illustrations. American Journal of Community Psychology, 23(5), 581–599. https://doi.org/10.1007/BF02506983




DOI: http://dx.doi.org/10.17951/lrp.2024.43.1.47-65
Date of publication: 2024-05-10 09:15:37
Date of submission: 2023-08-15 11:01:57


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